A MULTIPLE sclerosis sufferer from Inverness is preparing to undergo a cutting edge stem cell therapy in Mexico after raising more than £50,000 in just six weeks.
Rona Tynan, a retired Metropolitan police sergeant and mother-of-two, said she had been overwhelmed by the generosity of friends, family and even strangers after her plight was highlighted by the Herald in July.
Mrs Tynan, 50, is confined to a wheelchair as a result of secondary progressive MS and feared that unless she could raise the funds by the end of August, her condition would become too severe too qualify for the potentially life-changing procedure.
However, she revealed that she and her husband Mick have now booked flights to Mexico after raising £55,000 of their £60,000 target. The couple will fly from Inverness to Mexico City on October 5 and Ms Tynan hopes to be ready to begin treatment, known as AHSCT (autologous haematopoietic stem cell transplantation), at Clinica Ruiz in Puebla the following week.
She said: “I start tests on October 9. You have a week of tests - bloods, MRI, heart checks, a full MOT from head to toe - which I just hope I get through. If I don’t it’s back to the drawing board, and they’d have to give me another date. If there’s the slightest thing wrong, they can’t go ahead because you will die if you have the treatment and you’re not ready for it.”
AHSCT uses chemotherapy to strip out MS patients’ faulty immune systems before “rebooting” it with a transplant of stem cells harvested from their own bone marrow. Although the treatment has been available overseas for decades, it has never been routinely available on the NHS and is considered unproven by many neurologists. However, some sufferers credit it with reversing their symptoms and halting the progress of the disease. Some have gone from wheelchairs to walking again, or even ski-ing and dancing.
Mrs Tynan said she had been bowled over by people’s kindness during her fundraising bid, including a local timber businessman who gifted £10,000 after a chance meeting at lunch and donations from as far afield as Australia and Spain.
Mrs Tynan added: “One lady, who doesn’t even know me, sent me £722 in an envelope. There was a £500 cheque in it from some wealthy man - she was cleaning for him and she told him about me and he just wrote a cheque out and said ‘can you give this to that girl’. And she had raised £222 from doing a bake sale with her children. She wrote this lovely letter to me about how it’s better to give, and that’s what she taught her children.
“Then there have been all the anonymous donations. A Herald reader wrote me a letter with £100 in it saying she had been following the story. I thought that was lovely. I really am so grateful and thankful.”
Mrs Tynan added that while the gravity of the procedure is starting to “hit home”, she wants to highlight the promise of stem cell therapy - and the inequality of access to it.
AHSCT is currently being tested in clinical trials in Sheffield and London, but NHS England has also paid for a small number of MS patients to undergo the therapy “off-trial” on the health service. It is not available in Scotland.
Mrs Tynan said any cash leftover from her own fundraising effort would be rolled over and put towards helping other patients saving up for the same procedure.
She added: “Hundreds of people would love to get this done and they’re just never going to be able to raise this money. My heart breaks for those people.
"It’s a lottery of who’s got money and who hasn’t, and that makes me feel very sad to think there’s people rotting behind closed doors now who probably feel quite upset because they can’t get their hands on it. These are the people we need to target and help.”
Why are you making commenting on The Herald only available to subscribers?
It should have been a safe space for informed debate, somewhere for readers to discuss issues around the biggest stories of the day, but all too often the below the line comments on most websites have become bogged down by off-topic discussions and abuse.
heraldscotland.com is tackling this problem by allowing only subscribers to comment.
We are doing this to improve the experience for our loyal readers and we believe it will reduce the ability of trolls and troublemakers, who occasionally find their way onto our site, to abuse our journalists and readers. We also hope it will help the comments section fulfil its promise as a part of Scotland's conversation with itself.
We are lucky at The Herald. We are read by an informed, educated readership who can add their knowledge and insights to our stories.
That is invaluable.
We are making the subscriber-only change to support our valued readers, who tell us they don't want the site cluttered up with irrelevant comments, untruths and abuse.
In the past, the journalist’s job was to collect and distribute information to the audience. Technology means that readers can shape a discussion. We look forward to hearing from you on heraldscotland.com
Comments & Moderation
Readers’ comments: You are personally liable for the content of any comments you upload to this website, so please act responsibly. We do not pre-moderate or monitor readers’ comments appearing on our websites, but we do post-moderate in response to complaints we receive or otherwise when a potential problem comes to our attention. You can make a complaint by using the ‘report this post’ link . We may then apply our discretion under the user terms to amend or delete comments.
Post moderation is undertaken full-time 9am-6pm on weekdays, and on a part-time basis outwith those hours.
Read the rules hereLast Updated:
Report this comment Cancel